Omair Sana Foundation – thalassemia free pakistan

OMAIR SANA FOUNDATION

JOIN HANDS IN THALASSEMIA FREE PAKISTAN

Omair Sana Foundation stands for providing the best care and treatment for children of Thalassaemia & other blood diseases, promotion and creation of awareness to the society through all available resources & means, focusing on the prevention of this disease from spreading in the society.

The Foundation also stands for the socio-economic empowerment of the poor and the marginalized section particularly women for quality of life and career by ensuring their active participation in its activities of decision and policy making.

VISION

Omair Sana has a vision of Thalassaemia free society of Pakistan in 2030, ensuring availability of best tools & techniques for the treatment, reducing the prevalence of Thalassaemia gene in the society.



More than 15 years of

successful treatment

MISSION

The Foundation believes that a better society based on principles of equity equality, non-violence, justice and human rights is possible; where in collective endeavour has the potential of actualizing human ends.



More than a thousand of
satisfied patients

Thalassemia

Thalassemia is the most common genetic disorder in Pakistan , where the carrier rate is 5-8%. Thousands of children are born each year with beta-thalassemia major requiring blood transfusion for the rest of the life, iron chelation and supportive care.
Thalassemia is the most common genetic disorder in Pakistan , where the carrier rate is 5-8%. Thousands of children are born each year with beta-thalassemia major requiring blood transfusion for the rest of the life, iron chelation and supportive care.

Below are the details of the disease.



THALASSEMIA INTER-MEDIA

Thalassemia Intermedia is a milder form of Thalassemia that is caused by one of the more severe thalassemic genes and one of the milder thalassemic genes. Children with Thalassemia intermedia start to develop symptoms later in life than those with Thalassemia major, usually becoming pale and developing symptoms around 2 years of age. They are moderately anemic but a large number of the patients survive without regular blood transfusions.



THALASSEMIA MINOR

In Thalassemia minor, the hemoglobin genes are inherited during conception, one from the mother (egg) and one from the father (sperm). People with a Thalassemia trait in one gene are known as carriers or are said to have Thalassemia minor. The only way to know if you carry the Thalassemia trait is to have a special blood test called hemoglobin electrophoresis which can identify the gene. The carriers of Thalassemia minor become anemic or slightly anemic.



THALASSEMIA MAJOR

The severe form of Thalassemia, Thalassemia major, occurs when a child inherits two mutated genes, one from each parent. Children born with Thalassemia major usually develop the symptoms of severe anemia within the first year of life. They lack the ability to produce normal adult hemoglobin (red blood cells). Children with Thalassemia major are so chronically fatigued they fail to thrive and do not grow normally. Left untreated, this disorder will cause bone deformities and eventually will lead to death within the first decade of the child's life.