Patient Support Program
The Foundation supports over 400 thalassemic patients, fully and partially, and provides them with the required treatment in the form of medicines and blood transfusion.
For extremely needy patients, the Foundation contributes for Bone Marrow Transplantation (BMT). We are proud to have supported Twenty five plus ( +25) BMTs to date.
Most of the children we support do belong to poor families and have health reasons; therefore, they are unable to go to mainstream schools. To make up for that, we run classes for them wherein they are taught basic education. For the children who go to mainstream schools, we take care of their requirements such as stationary, books, uniform and school fees etc. so that they can continue their education.
We arrange picnics, parties, fun galas, religious events such as Milad, Eid Milan, etc for the children. We also take them to Thalassaemia related events for their active participation. So, this helps these Thalassemic children have their share of the recreational activities which is enjoyed by healthy children.
Patients’ family screening
We run a ‘extended family screening’ program. In this program both immediate family screening ( IFS) and Extended family screening ( EFS) is performed. Thalassaemia is a genetic disorder that runs in families and transmits from generation to generation. Thalassemic families and their close relatives are screened through a test to identify the extension of the gene in the family. It is a pre-emptive program for this prevention strategy.
We have already started this program and have covered over 125families of Thalassemic patients.
Pre-natal (CVS) Screening
We also conduct chorionic villous sampling (CVS) , an important test for detection of Thalassaemia baby before birth. It is done by extracting a sample from the expecting mother form her uterus and based on the results, counseling for the available choices of abortion or continuation is recommended.
Prenatal screening for Thalassemic status will also significantly contribute to reduce the incidence of Thalassaemia in Pakistan. We provide this facility to all the patients who need this support we have offered different NGOs working for Thalassaemia and other centers in interior Sindh our cooperation in this regard. We have already done prenatal screening for over 460 expecting mothers and advised 150 abortions accordingly based on the results. Omair Sana Foundation helped to save 10.8 millions of national exchequer.
Social & Genetic Counseling
Counseling plays a key role in any prevention program. Considering the social taboos and fears in our society, we understand that we would not be successful in our aims if the patients’ families, professionals and general public is not properly educated on the disease. We are already conducting group and individual counseling sessions and to spread this program to at least 700 families with Thalassemic children.
We believe that the awareness and efforts made by us will also lead to a combine effort from all stakeholders and will cover all Thalassemic patients’ families in this regard.
The Foundation conducts periodic workshops for awareness creation among parents of Thalassemic children. We run a ‘extended family screening’ program. We also conduct chorionic villous sampling (CVS) and based on the results, counsel for the available choices. We have completed a pilot project of family screening comprises of 100 families. A research paper has also been prepared about the study and has bee published in a Medical Journal (IJMEG).