We believe that the awareness and efforts made by us will also lead to a combine effort from all stakeholders and will cover all Thalassemic patients’ families in this regard.
The Foundation conducts periodic workshops for awareness creation among parents of Thalassemic children. We run a ‘extended family screening’ program. We also conduct chorionic villous sampling (CVS) and based on the results, counsel for the available choices. We have completed a pilot project of family screening comprises of 100 families. A research paper has also been prepared about the study and has bee published in a Medical Journal (IJMEG).
AWARENESS PROGRAM
The Awareness Program is dedicated to educating communities about thalassemia, raising awareness about its prevalence, symptoms, and prevention methods. Through workshops, seminars, and outreach initiatives, we aim to dispel myths, reduce stigma, and promote early detection and treatment. By empowering individuals with knowledge, we strive to foster a supportive environment where thalassemia patients can receive the understanding and care they deserve.
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